Monday, June 25, 2012

Parties and Doctors

Yesterday, my whole family went to my friend Annabella's birthday party. She turned 9. Her party was at the Hot Wheels skating rink. Almost every skating song they played was one I knew. They had pizza, cake, cupcakes, chips, and ice cream. It was a really fun party, and I enjoyed seeing Annabella again. The party was really fun.

Today I went to the ENT. The doctor said that my ear is still infected, so I have to wear ear plugs whenever I get in water. I even have to wear plugs when I'm in the shower! Dr. Hermann also said that I'm going to need new ear tubes because my ear is still infected. I am nervous about getting new tubes because it means my 16th operation. Even though I don't want the surgery, I also want to get rid of the infection. I really hope the operation goes okay!!!!!!

Saturday, June 16, 2012


I AM SO EXCITED!!!! My mom got my MDA Summer Camp packet in the mail today! Mama will drop me off at Camp Rock 'N' Roll on July 1st, and pick me up and the 6th. On Sunday, the first day of camp, some bikers will come and do the camp activities with us. On Monday, we will have a luau with music, games, and swimming. On Tuesday the theme will be Los Vegas and we will have and talent show.  I will either play a song on the piano or sing for the talent show, because I enjoy and am good at both. Wednesday's theme will be America! They will have food, a band playing music, and then a video to celebrate our country. Texas will be Thursday's theme.

I can't wait to go to Camp Rock 'N' Roll! I am soooooo excited. There are exactly 15 days until camp starts. I'll write another post for you guys either right before camp or right after. Bye!!!!

Friday, June 15, 2012

Bad Day

I have not had a very good day today, have you guys? This morning my mom accessed my port, and that did not go very well. I got very upset because I was scared, and I even cried and hyperventilated! I was scared because last time my mom tried to access my port, she missed the port and it hurt really badly. This morning, though, she got it on the first try. It hurt, even though I had put on my numbing cream, but only a little. My dad texted my mom to ask how the accessing went, and I told her to tell Daddy that she missed twice before she got it. He actually believed her, and Mama had to send another text to tell him that she was teasing.

Lately I have not been wanting to eat that much, and this morning I got mad when my mom and Ms. Edie, my nurse, told me that I had to eat breakfast even though I wasn't hungry. I got upset because I wasn't hungry and didn't know what I wanted to eat. Mommy kept suggesting things, and finally I decided to have some hot chocolate. Mama made it for me, and it was really good, even though I wasn't hungry.

After getting really upset about my mom accessing my port, and then doing physical therapy, I am pretty tired. I am glad that tomorrow will be a new day, and I hope that tomorrow is better than today was. I hope you guys have a good day. Bye!

Saturday, June 9, 2012

A Memo From Mattie

HI, GUYS!!! I'm so glad that it is summer vacation now because I don't have to do anymore school! I like learning, but sometimes it's nice to take a break. I did pretty good on the CRCT (Criterion-Referenced Competency Test). I exceeded in all subjects! The subject that I got the highest score in was reading. In the sixth-grade reading, you must get over 850 points to exceed, and I got 893 points! I was really proud of myself.

This week, I've been a little tired. Yesterday, when I woke up I just went upstairs, said good morning, and laid down on the couch with a pillow and blanket! Today, I feel a little better, but I am hot from going outside to play basketball with my brother. My temp went all the way up to 100.3 degrees! My mom said that my face was the color of a fire engine.

Yesterday I went to see my ENT. ENT stands for Ear, Nose, and Throat. I had to go there because I have a really bad ear infection in my right ear. It's been there for a couple of weeks, and it won't go away. When we were at the doctor's office yesterday, a doctor named Dr. Ellen had to suction out my ear. She put something that looked like a straw in my ear, and it sucked out the goop in my ear. It felt weird, and one time it hurt a lot. I was glad when they were done. We have tried ear drops for my infection, but they aren't working, so I might need to take an oral medicine. The good news about that is that I don't mind taking pills, and if the medicine is a liquid, my mom can put it through my G-Tube so I won't have to taste it. Another reason I had to go to see the ENT was because I have thrush. It does not hurt or anything like that, but it won't go away, just like my ear infection.

At 2:00 pm today, my nurse Ms. Suzie is coming. Ms. Suzie's real name is Marie-Suzette, but we call her Suzie for short. I really like Ms. Suzie because she is funny, she likes the same music that I do, and we paint our nails together. Ms. Suzie braids my hair every time that she comes; sometimes with one or two large braids, sometimes with a whole bunch of small ones. My PT (PT stands for physical therapist) Ms. Leigh, is also coming at 2:00. She has me working on my hamstring stretches and yoga. I don't like stretching, but I love yoga. My favorite poses are the tree pose, the warrior pose, and the triangle pose. Some people think that yoga is boring, but I think that it is fun.

I've been trying to practice my piano a bit more recently. My Top Three Songs are :

1. House of the Rising Sun

2. Fur Elise

3. The Piano-Playing Chocolate Eater's Blues (this last one is really cool. Maybe I'll take a video of it for you sometime!)

I practice these songs more than any of the others. Even though I have a piano in my room that my grandmother gave me, I usually practice on my keyboard. This is because the piano not tuned, so some of my songs sound weird.

Another one of my hobbies is reading. I can read almost anything! My CRCT test results show that I have a high school or college reading level. My favorite types of books are Sci-Fi, Fantasy, and Historical books. Even though I like these best, I also enjoy reading things like "The Book of Useless Information" and "Words You Should Know to Sound Smart." Sometimes I read dictionaries for fun.

Well, I hope that you guys enjoy reading this post and that you have a wonderful day! Bye!!!