tag:blogger.com,1999:blog-7783986479429371762.post8900828562651446409..comments2017-03-13T08:49:16.203-04:00Comments on Memos From Mattie: Mito Week!!Mattiehttp://www.blogger.com/profile/15009987147367826809noreply@blogger.comBlogger17125tag:blogger.com,1999:blog-7783986479429371762.post-55745623284928577252011-09-23T15:32:02.149-04:002011-09-23T15:32:02.149-04:00Mattie I am so impressed by the sincerity and hone...Mattie I am so impressed by the sincerity and honesty with which you write. I don't think you realize what a special young lady you are and it's one of the things that I absolutely love about you. You truly inspire me! Keep using the gifts God gave you because you make the lives of others better around you when you do! Love, Miss SarahSarah the SLPhttps://www.blogger.com/profile/03756319469606325678noreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-70998551652092007322011-09-23T13:41:28.393-04:002011-09-23T13:41:28.393-04:00Mattie, thank you for sharing what it's like l...Mattie, thank you for sharing what it's like living with mitochondrial disease from your perspective. My son has VLCADD, which is a fatty-acid oxidation disorder, another type of mitochondrial disease. He is not old enough yet (18mo) to share his story but I hope when he is older he has the strength and courage to share his story like you. You are doing a great job getting the word out about Mitochondrial Disorders!Dana Khttps://www.blogger.com/profile/04126193301311318519noreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-84911476069928250162011-09-22T18:51:59.509-04:002011-09-22T18:51:59.509-04:00Mattie,
As many people here have posted, your beau...Mattie,<br />As many people here have posted, your beauty explodes....your personality and charm touch so many! I want to tell you how wonderful and inspiring it is for you to share your heart and bear your feelings here for us to read. That is not easy for some adults and here you admit that some days things are hard. Honey, I know there are days when it is hard and I just want you to know that there are so [SOOO] many people who love you and on those days, make sure you tell us you need some extra prayers so we can be along side of you in spirit to help you. I pray for a cure and until that day, we will continue to pray for your strength. We love you mucho!!! Can't wait to see you again!Katie Libsnoreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-64417134113245552582011-09-22T16:36:20.664-04:002011-09-22T16:36:20.664-04:00Mattie-
You are beautiful girl inside and out!!! ...Mattie-<br />You are beautiful girl inside and out!!! You put your words together great to explain more about Mito and how YOU feel!!! I have not seen you since I worked with you in preschool @ Sugar Hill Baptist. You have grown into such a special young girl- I would love to see you and catch up!!! I miss your smiling face on the playground!!!! Jennifer DavidsonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-85808419580782808732011-09-22T15:30:09.297-04:002011-09-22T15:30:09.297-04:00Mattie, I think you are an amazing person and stud...Mattie, I think you are an amazing person and student! You have inspired me and I am so lucky to have met you (last year) and to teach you this year! Thank you for sharing your blog with me! Continue to educate people about Mito and I know you will make a difference in other people's lives! Ashley PriceAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-27416959660628887422011-09-22T11:55:11.094-04:002011-09-22T11:55:11.094-04:00Mattie,
Thanks educationg us about Mito. I had no...Mattie,<br />Thanks educationg us about Mito. I had no idea what it really was! I can understand being frustrated about something that is out of your control! Keep fighting and praying. We'll keep praying and will tell everyone we know to read your blog so they can understand too. Out there somewhere is the special person that God has chosen to help find a cure for Mito!<br />Katie & Tony GonzalezAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-18874453512641973102011-09-22T11:53:11.693-04:002011-09-22T11:53:11.693-04:00WOW – Such wisdom from someone so small.
Sometim...WOW – Such wisdom from someone so small. <br />Sometimes others see the hand of God where we see nothing. I can’t claim that I know why God gave you this disease, but as I read your article, it occurred to me that this disease needed a voice and God could not have given it a more beautiful and sincere voice than yours.<br /><br />Just know you are always in my prayers!Douglas James IIIhttp://rippleimages.comnoreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-57846473620707318302011-09-22T11:42:31.302-04:002011-09-22T11:42:31.302-04:00Mattie, I think you are so brave to share so much ...Mattie, I think you are so brave to share so much of your feelings in this blog. I have a daughter who is newly diagnosed with Mito. You sharing your feelings helps me understand how she might feel. I think that God doesn't give us Mito. I think he gives us the strong spirit and courage to live a great life, in spite of Mito. Clearly you are making the most of every day and making a difference. Thank you for helping others by sharing your story and spreading the word about Mito. Please keep writing. And keep on finding the good in every day. You are a very brave girl!!!!!! AllisonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-21939864161478845712011-09-22T11:40:38.957-04:002011-09-22T11:40:38.957-04:00Thanks for posting this Mattie. I learned a lot. Y...Thanks for posting this Mattie. I learned a lot. You Rock!Chad Mnoreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-79604882630685736362011-09-22T11:07:54.886-04:002011-09-22T11:07:54.886-04:00awww isnt this the truth!!!be strong Mattie!we lov...awww isnt this the truth!!!be strong Mattie!we love you and yes we knoe what its like!!we go through it everyday as well:(<br />Amanda and LaytonAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-26151615454590333272011-09-21T07:31:56.040-04:002011-09-21T07:31:56.040-04:00Mattie, my family and I are Blessed to be in the s...Mattie, my family and I are Blessed to be in the same Church with you. Your courage inspire many people to be grateful for life no matter the circumstances, and God knows that. Thank you. Joelma (BTW, I'm Rodrigo's mom; he in in Revolution, perhaps you've met him.)Joelmahttps://www.blogger.com/profile/07651252293621370922noreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-49022132075800602942011-09-21T06:13:55.445-04:002011-09-21T06:13:55.445-04:00Mattie, you are one of the strongest people I know...Mattie, you are one of the strongest people I know of. You inspire those around you and even those who just know about you.<br /><br />Thanks for your post, you gave me some perspective for the day.tsinclairhttps://www.blogger.com/profile/15889571064190993005noreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-14682978291361191622011-09-20T21:13:37.251-04:002011-09-20T21:13:37.251-04:00Mattie you are a super smart girl and such a great...Mattie you are a super smart girl and such a great writer! I have learned so much since meeting you and am so glad that you have shared what it is like to have mito. Most people just don't have any idea what it is like to have a disease. You have given us an idea of what you have to go through. I think you are very brave! We love you & your family :-)<br />MichelleMommyhttps://www.blogger.com/profile/02233642161892369256noreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-33328561267875638562011-09-20T16:01:20.736-04:002011-09-20T16:01:20.736-04:00Mattie you are a beautiful, smart and courageous g...Mattie you are a beautiful, smart and courageous girl. I love your post and your honesty. I didn't know anything about Mito until I met you & your family. You all are such an inspiration. <br /><br />Much love!Stephaniehttps://www.blogger.com/profile/03372225012802903998noreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-39327208545713428952011-09-20T13:47:32.230-04:002011-09-20T13:47:32.230-04:00That was really well done Mattie! You are a great ...That was really well done Mattie! You are a great spokesperson to bring awareness to the Mito community. I think you are awesome! <br />Ms. StarlaStarla Deatonnoreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-50792437429720041552011-09-19T21:14:44.224-04:002011-09-19T21:14:44.224-04:00Mattie, I understand the frustration...Why me?
I ...Mattie, I understand the frustration...Why me?<br />I do not have the answers to that question, but I can you that you and your family are Ambassadors for everything you have had to endure. Because of you, more people are learning of the disease and all the "side effects" that go along. I do Pray that you can have MANY more days with energy and little pain..and Many more Walks and Blogs to send out the message! Love to All Ya'll !!! :)BarbShttps://www.blogger.com/profile/05625525561287676798noreply@blogger.comtag:blogger.com,1999:blog-7783986479429371762.post-61642806602198962252011-09-19T18:00:11.554-04:002011-09-19T18:00:11.554-04:00Great job Mattie, such words of wisdom! Together ...Great job Mattie, such words of wisdom! Together we can help find a cure! <br />Heather & AnnabellaAnonymousnoreply@blogger.com